It’s about time for an update.
I have been very preoccupied with a transition in my treatment for the past two months, and it has made it impossible to do tasks beyond the bare minimum of food, sleep and work. Blogging has been off the agenda–but I’ll catch you up this morning.
I also wanted my next post to be positive, with some good news, hoping the Klinghardt protocol would result in some progress. It seemed for quite some time that it wasn’t moving me much in the right direction. I’ve now had four treatments in the past 5 months.
However, the past two months have been a wild ride! Now movement is happening, I’m pleased to report.
Each appointment has taken the better part of a half-day at the clinic, with the first hour being mostly diagnostic, with Dr. Kimiai evaluating my progress using Autonomic Response Testing (a specific form of energy testing developed and taught by Dr. Klinghardt). This just allows her to measure my progress and response to the things I’ve been doing at home objectively, and what new things are presenting themselves. It’s been different every time.
Following that, she decides what treatments are appropriate–and the rest of the time there, I am poked, prodded, flushed, and submitted to a variety of mysterious treatments, none of which do I seem to have more than once, at least so far. I have given up trying to make sense out of them and instead just go with the flow, with an attitude of trust.
To date, I’ve had:
- IV treatment
- Neural therapy
- A vibrational frequency “analysis” of some sort
- UVBI: Ultraviolet blood irradiation (they passed my blood through an ultraviolet light machine before pumping it back into me)
- Ellagic acid (laetrile)
- Homeopathic treatments
- Many other supplements and special tinctures to take at home
For a traditionally trained RN, it’s a leap of faith, to be sure. But it seems to be working.
Before my appointment in June, she wanted to see me “off meds.” I have been on Ultram for pain management for 6 years, and narcotics for years before that.
I have tried, a few times, to go a few days without Ultram as a way to “see what kind of shape I’m in” without meds, hoping to get off them at some point. Never made it even 48 hours without pain increasing to intolerable levels, with the onset of severe flu-like symptoms. I always attributed that to the fibromyalgia symptoms breaking through, quickly resumed the Ultram, and within 12 hours, felt much better so concluded I “needed to be on it.”
I have discovered that was an erroneous conclusion, based on what happened in June.
I decided to be off the Ultram for about five days, ending with my appointment with Dr. Kimiai. After two days of pain, sleeplessness, anxiety, hot flushes, chills, sweats, tachycardia, diarrhea and crawling skin, it occurred to me that I was in narcotic withdrawal.
But how could this be? Since Ultram isn’t technically a narcotic. And it’s not supposed to cause dependence, according to the physicians I asked many years ago, when I started on it.
They were wrong.
Ultram (tramadol), although not technically a narcotic, binds to your body’s opiate receptors. So you can, and will, develop physical dependence on it.
By the time I received a response from Dr. Kimiai and the pain specialist, I was 4 days into detox. They both said I shouldn’t have gone “cold turkey” and the only option for lessening the symptoms of withdrawal would be to go back on it, then taper off. To me, that just prolongs the agony. So I just toughed it out. I verified I wasn’t in any danger, medically…unless thoughts of tearing one’s hair out is considered a medical emergency.
It was 7 days of Hell, but after that, I did begin to slo o o o o wwwwly feel a bit better.
On day 5 was my appointment with Dr. Kimiai. I had been suffering a relentless migraine for three days. She hooked me up to a large dose of IV vitamin C, and in 60 minutes, the headache was 90% gone. It returned in a milder form the next day, which continued for two days. But since then, I haven’t had one migraine.
When I initially decided to go off the pain meds for the June appointment, I intended to resume them afterward. But once I realized the havoc they were wreaking on my system, I decided that I would do everything I could to not resume them. And it has been a good choice.
It’s now been 6 weeks since my last dose of Ultram, and I’ve only had one dose of the Norco (a narcotic I would occasionally use as needed when the Ultram wasn’t working), which was during the second week so that I could clean my badly neglected house.
I can’t say that I am all better now… but I can say that I feel better than I did on the pain meds, in nearly every way. During the first 10 days, I was unable to walk to my mailbox without sitting on the ground to rest…and it’s downhill! Yesterday, Jon and I went to a movie and a potluck, and I did well.
It is safe to say that the Ultram was causing more problems than it was solving…
My thinking is clearer.
My headaches are virtually gone.
I’ve had no bladder pain or infections.
The body pain is tolerable, unless I exert myself with errands or gardening. And when I do, I can adequately treat the pain with rest, a hot soak, and two extra strength Bayer aspirin.
My energy level is no better–probably worse many days. I think this is due to the extreme insomnia I’ve had since discontinuing the pain meds. For the first 4 weeks, I slept barely 2-3 hours a night….lightly. Now I’m up to 4. The homeopathics aren’t helping here. I’ve tried every sleep herb, and melatonin, to no avail. Crazy-making that is!
Not sure what to do next on this sleep issue. Baseball bat?
But overall, I do feel like I am moving in the right direction.
At the last appointment (last week), Dr. Kimiai said my body is letting go of some chemicals (I’m probably outgassing pharmaceuticals), and has three major infections that have surfaced. Lyme, Mycobacteria, and another one whose name I don’t recall since I’d never heard of it. This is what prompted her to finally use the UVBI on me, which is a very potent immune system booster and anti-pathogen treatment.
This time, she sent me home with:
- MMS: Short for Miracle Mineral Solution, which has now cured hundreds of thousands of people from malaria and other infectious diseases
- Low dose naltrexone (LDN)
- A combination of super potent herbs used to treat bacteria
- Something called Parasite Purge, with black walnut in it among other things, for flushing out the intestines (and it really does)
- Three homeopathics for sleep/calming the central nervous system
- And all the usual things I take (antioxidants, minerals, etc.)
I go back on August 13th for my next round of care. Who knows what’s in store for me then, but I can only say that my level of confidence in this whole thing has gone up many notches these past two months. I am not seeing rapid progress–but I think I’m seeing permanent progress.
And that’s good enough for me.